Dad used to cry for no apparent reason which I’m presuming is normal for someone with Alzheimers, though I never did ask anyone... a bit remiss of me I guess. But, something would cross Dads mind and he’d start to cry.
I have to say the first time I saw Dad dissolve in tears I was taken back. Mum had got used to it. She didn’t always enquire after his problem because she’d also got used to his not being able to explain the cause of his upset. Again I presume this is part of the Alzheimers disease process. Some days I would ask what was wrong, other days I would just watch to see if I could pinpoint a cause.
It looked to me as if Dad was suffering emotional overwhelm. As though he could feel an emotion, and could feel where it came from, but couldn’t explain it. For example he’d look at a photograph that had been hanging on the wall for years, and the emotion attached to the thought about that picture would overwhelm him, and he’d cry.
Initially I wasn’t sure if Dad was always aware that he was crying. Though I do think he knew he felt not quite right. After a while, when he cried a lot, it seemed he’d just given in to his state, and he’d walk around the house looking at this and that, maybe carrying a photo with him, crying and muttering to himself.
Are you OK Dad?
Sniff, gulp, cry.
What’s wrong Dad?
Sob, weep, sniff… and he’d be off in his own world of…what?? What was going on in his head? We didn’t know and he couldn’t tell us. When he tried, I can’t speak for all the whanau, but I know Glenn and I, we could only guess, we didn’t understand.
During an earlier period in Dad's Alzheimers decline mum went on an overseas trip with her sister, they were gone for three weeks, Glenn and I stayed at the house most evenings and Dad would be distraught almost every night. But he couldn’t tell us why.
Glenn would sit with him and ask what the problem was, but the response was either ‘All’s Well’, which it obviously wasn’t or where’s my wife? Or, he’d blame himself for Mum’s absence – ‘I’m bad, it’s my fault, she’s found someone else’ and he’d hit himself on the head, repeatedly. Slap, slap, slap. That behavior, which he’d been exhibiting for a little while, as well as the crying, wasn’t easy to watch either. We’d talk him out of that if we could, even if it meant holding his hand and returning it to his lap. Then he’d hit his thigh or the armrest of his chair instead.
I tried to deduce, one day, why he’d take to himself like that and, if you ask me, it looked as though he was trying to knock his thoughts and emotions back into order - Why can’t I make this connection? Why am I thinking crazy thoughts? What is going on? Why can’t I think straight? Why aren’t you working brain?….slap, slap, slap…Work brain, bugger you, work!!
How confused and muddled must your head be to want to slap yourself back into shape? I can only imagine.
I don’t recall that Dad ever had the opportunity to talk about what was going on in his head. Whanau were there, but none of us were an authority in the field of Alzheimer’s. We were only doing what, at the time, we thought was right.
Hindsight is a wonderfully pointless thing sometimes. Maybe we should have called in an expert Alzheimers specialist to talk with Dad about what he must have been feeling, because we know now the realization you may be losing your mind is a scary thing.
But in NZ, and little town NZ especially, Alzheimers experts are few and far between.
So, Dad was left to cry.
